Iv been doing well while iv been at home, doing everything im supposed to be doing, walking, not much but as much as i can without a wheelchair. Walking up and down the stairs too, i see that as my exercise walking up and down them a few time a day. Although the other day without even thinkijng of my chest, i RAN up the stairs!! I got to the top and was like 'what did i do that for!!' My chest hasnt seemed to tell my legs i can run anymore lol opsie!
I was also on the ITV anglia news last week for CF week, help raising awareness and get more people to sign up to be an Organ donor :) i think i done quite well and had some people message me telling me that they have now signed up! So i see that as a job well done! Heres a link to the online interview if you missed it
http://www.itv.com/news/anglia/update/2013-06-27/cystic-fibrosis-sufferer-calls-for-more-donors/?action_object_map=%5B521188267930309%5D&action_ref_map=%5B%5D&action_type_map=%5B%22og.recommends%22%5D&fb_action_ids=10151431337261601&fb_action_types=og.recommends&fb_source=other_multiline
Last night while i was sleeping my oxygen came off from the middle of the line, so i didnt notice until i woke up that i was asleep without it. So i woke with a banging head ache, and very breathless. I came down staires done all my meds then went back to bed for a little bit WITH my oxygen on this time, im now feeling a little better, so iv told myself to get up and get ready go and sit in the lovely weather and then watch the tennis! :) I have Clinic Monday and i will ask to go on IVs , hopefully i can do them at home!
Its also Transplant Week next week, so be sure to help me in getting people to sign up to be a Donor! You can order these tops
from here for free as long as you post a pic of yourself wearing it!! :D
On Tuesday iv been invited to a little transplant event at papworth, i will be going and meeting up with some friends i have made via online, cant wait to see them :) Kath & Rob and also Stacie!! :D see you sooon!!
6,989 Hours on the transplant list
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