Thursday, 24 April 2014

Dreams come true.

Today was clinic day, its been 3 weeks since my last one.. I was a bit nervous for today and i had just got out of that habit!

So up early and out the door by half 7 this morning, my gramps came with me today, we stopped off at McDonalds and had breakfast.. my gramps did make me laugh.. he wanted a bacon wrap with salad no matter how many time i told him they wouldn't do that he just wouldn't listen so of course i had to ask for it for him when we got there..obviously i was right lol Well we got to the hospital and checked in, i went for the usual bloods, xray and lungfuction. I was a bit gutted today as my lungfuction is down a bit. Its down 10%.. i started panicking think that they will want to keep me in for a bronc or biopsy. The wait to see the doctor was horrible we waited 2 and a half hours! i was last to be seen! The chairs were killing my back!

I had to wait because the main consultant wanted to see me, this scared me. Obviously i thought the worst as always. But it turns out because i hadnt seen her since Febuary she just wanted to say hi lol Phew!!
She said everything looks good, my weight is up and xray has no change and chest sounds 'amazing' ( her words) lol Shes not worried about the drop in lungfunction as my chest is finding its base line. So over the next 6 months it will be up and down. I am going back in 2 weeks though just to keep and eye :)

So Easter weekend  was amazing! :D I was out on the Friday night AND Saturday night..i had an actual alcohol drink! And im embarrassed to say one and a half was plenty for me! haha. I was .. lets say happy haha. Then on the Sunday me and the family had a Christmas dinner! Over December i couldn't eat my Christmas dinner as i had a bad sickness from my transplant! :D So as i was gutted i missed out on the beautiful goose, so my step dad brought one a few months ago. That dinner was amazing :D

This weekend i am finally going to stay at my besties for a weekend in london!! :D i havent been able to do this since she moved there as i was to unwell but now i can and i ma so excited!! ITN also got me two tickets to see McBusted on Saturday too! so we will be going there after our long shopping trip and lots of food! I am using my suitcase for something other than hospital! woo!!! :D :D

Sunday, 13 April 2014

I want to live at privet drive

On Monday i went to the Harry Potter studios with my brother and sister.. it was amazing, i had been before but i swear it had got better the second time i went! i want to live there haha i so want to go to Harry Potter world in orlando!! Cant imagine how good it would be there! lol So grateful that i had the chance to do this again and walk around for that long after just months after my transplant and enjoy the day with my brother and sister. 

The place i wish i could live!

The second house i want haha. 

Diagon ally selfie

This weekend was great. I went out last night and had a few drinks...well one and a half haha. that was enough for me, i was 'merry' :) haha. Im really not used to drink, haven't had one in a good few years! I woke up with a sore head lol. but was a good night :) 

This weekend i have also applied for a course! I am now studying acrylic nails...I have already passed my nail tech and gel nail course, so im excited to start this one. I had to stop doing nail as the dust was effecting my chest, but my transplant team have said as my lungs are like anyone else's now they don't see why i cant do them again :) Yay!! :D Cant wait!! 

Today was also a good day! i played on my brother trampoline!! havent ben able to do that in about 5 youngest brother is 3 and his face when i said shall we play on it was a picture..he didnt know what was going on..and when we were jumping he said 'are you all better now' was lovely :) 

End of this month im off to london for a whole weekend! :D so excited! im staying with a friend there :) and we have tickets to see McBusted! we are so excited!! Have to say thanks to my mumma and Lawrance and everyone at ITN for getting them for us :D we will be doing alot of shopping in Oxford street too!! yay!!! 

Wednesday, 9 April 2014

Kerry Alex Thorpe

Well today was a hard day. 

Two weeks ago a beautiful young lady passed away. She was with her family, fiancĂ© Josh & her two pups who she loved as if they were her children. 

Today the weather was beautiful, so sunny and not a cloud in the sky. It was perfect for Kerry, it was like she was shining through. Her funeral was in Ipswich, and it was jam packed! There were so many people they to say goodbye, i would say a good 100 odd (even her pups!) 

The words from her family were so touching, i don't think there was a dry eye there. 

I met some friends there i speak to online, i have met Pennie before, but hadn't met Kirstie before, and her husband! You might remember Kirstie from her TV documentary a few years ago on BBC three 'Love on the transplant list'. So it was lovely to meet them :) 

Me Pennie, Josh & Kirstie
Stu, me ,Pennie, Kerry, Kirstie & Josh.

Josh has set up a Trust for Kerry. If you would like to make a donation here are the details :) 

The PayPal email address is - if you wish to send money on there do so "as a friend" and there will be no charges.

Also here is the Kerry Alex Thorpe Trust facebook page, please like :) Thank you. 

Click here to also sign up to be a donor if you still havent!! 

Thursday, 3 April 2014

Six months ago..

Well i cant believe its been four months since my transplant already!! 

When i look back to six months ago i just cant believe the difference... October time i was in hospital for literally the whole month, i was on my oxygen all the time and i when i went out i had to be in a wheelchair... Now im running up the stairs, walking everywhere, doing everything myself...its the best feeling ever. Im so thankful to my donor :) 

So today i had clinic, my last clinic was 4 weeks ago, i haven't gone 4 weeks without any hospital in years!! Its also been 12 weeks since i had my last lot of ivs! :D Before my transplant i was on ivs 24/7! 

I had to be at my clinic for 9am today so me and my gramps left at 8, stopped off and had a cheeky MacDonalds breakfast. When i got there, i had to do all the usual tests, Lungfunction, x-ray and bloods. We didnt get in to see my doctor until lots of waiting around. Last clinic my lungfucntion was 68% and today it was 89%!!! Woo! :D Highest it has been in..way more than 6 years :) Im soooo happy!! 

Next week i am off to the Harry Potter studios! I have been before, but wasnt that great at walking around at that time, had to take my oxygen with me but this time...I can run around if i want too! hehe. And i will take lots more photos, didnt take enough last time... I can not wait!!