Thursday, 27 September 2012

Home sweet home

So iv been out 2 days! I had a busy yesterday was in and out all day, up and down the stairs too :) went to town and then to my dads, had a good day And only coughed twice! Was awesome I felt so good :) I think it's caught up with me today though, still feel good although a bit sniffy and sneezing, hoping this will pass and not turn into a cold! Don't want to be returning to pappy straight away!

I was ment to be going to shopping on my own today to help out my grandparents but iv been worrying an I'm a bit nervous going on my own, I haven't done a big shop with my chest like this before, I would of worn my oxygen and that doesn't bother me but if feel better if someone was with me. So my gramps is going to come with me later :)

I'm making some cupcakes tomora for my nan hardwicks little tea she's having then I'm off to cambs on Sunday for another Jamie Oliver's :) yum!

220 hours on the transplant list!

Thursday, 20 September 2012

Spread the word...

I just want to thank everyone that has already signed up to be an Organ Donor - but Im being greedy and want more!!!

I want more pics of you and your Donor card! Get everyone you know to send me there pic and in October il be putting everyone who has signed up in a raffle to win a prize! :)

Me and my step dad are in the middle of arranging a charity event for CF and LLTGL ( LiveLifeThenGiveLife) I will keep you up to date with it all :) but for now spread the word and get pics sent to me :) the prize will be announced soon, and it won't disappoint!

So get your card or banner saying your a Donor out & get snapping! :D share this blog as much as you can pleeeeeease :) thank you!! Xxxx

Wednesday, 19 September 2012

Quick update!

I'm writing this blog from my phone so I'm not sure how this will end up lol so here goes...

So my last blog was about my transplant assessment, I got a call to go back in a weeks time to sign some papers, they told me it would then be about a week before I got put on the list. So in the meantime of waiting I got pretty ill and needed to come in for some IVs, my infection level (crp) was 184!! Which is terrible! As iv said before it should be under 10. So I'm on meds now and on a drip 24/7, the time is going so slow aswell! Iv already been in a week which feels like about 3 weeks, especially as I don't have my laptop with me I don't have much to do in the day other than sleep and eat! Which isn't to bad as I'm putting my weight back on :) as last week I had a stomach bug and couldn't keep food down I lost 3 kgs, but alls good cos iv put it back on and more now :)

So while iv been in iv been trying to get hold of the transplant team to find out when il be on the list. And I found out yesterday that I'm finally on the active waiting list :D yaaaaay! I'm so happy that all my hard work has paid off, having my op that I was so scared of having was worth it and keep coming in hospital when I didn't want too was worth it :) I feel a little proud of myself! So now it's just a waiting game, I'm keeping my phone near me 24/7.. Not letting it out of my hands lol there is a lot I have to do still, only in the way of phone calls though. As in of I go more than an hour away I have to let Papworth know where I am and the address I'm at. And if I get a temp I have to let them know, and each month I have to ring with updates on my weight ect... But that's all :)

So happy happy happy :) sorry its a short but sweet blog, once I find my laptop lead il blog properly :)

Thank you for reading xxx