Thursday, 19 April 2012


To be honest im a bit scared about going home now. How will i cope with stairs and getting around? Will i struggle? Will i need to use Oxygen every time i want to leave the house? Some many worries at the moment...

Last night i had an Oxygen test to see if i need oxygen while i sleep. I didn't get much sleep as i kept waking up seeing what they where all night!.. Turns out i don't :) My o2 levels are 89-91% at night so that's all good! But when i walk they have been dropping too 88%. And the physio have said for me to use it when getting around. I will try when im home and go around without it see how i get on, but il make sure its in the car so i can quickly get it of needed. Im off to Cambridge Saturday & i wont have the oxygen by then so i will take my time and maybe sit for drinks every now and then..BUT I will get my Bunny this weekend! lol 

I had my PEG loosened yesterday, its a bit sore again now, had it moved around, i didn't want to look while the nurse was doing it, but i did.. and at the wrong time, was all scabby and gooie! Yuk! Il have to do this once a week at home myself. But it will be changing to a Button in a few weeks, which will be much smaller and will have no long tube hanging down. I keep sitting on it and pulling it, that does hurt! 

Today has gone soooo sloooow! Iv had 5 naps to try and pass the time! But i will be out of here tomorrow by 1 O'Clock!! :D :D :D Cant wait to have real food! Iv got new jammies waiting for me at home and a new bed set, can not wait! Also can't wait to wake up to Ben, its feels like forever!!   

Thank you again for reading & a big thank you to everyone who has shared my blogg, iv had so many messages from people, your all to kind. :) xxx

Monday, 16 April 2012

Home time!!

Im finally aloud home!! :D YAY! Im packing ready for Friday :D 

So this week again, has been and up and down week. I got sent down for a chest X-Ray which is a normal weekly thing. I had it done went back to my room and was sitting talking to a nurse when my Doc came in and was holding my X-Ray form. I knew something was wrong then as they never come and tell me how my X-Ray is straight away. He told me i had air in my belly and i needed a CT scan, i panicked straight away and i asked him ' Will it kill me' ..which now i hear myself saying it i sound so silly, he laughed and said no he said the air is under my diaphragm which means it cant get into my chest. So they wanted me to have a CT scan that night, i only waited about 20 minutes before i went down for it, i had to have a cannula put in because the CT scan i was having i needed dye put in me so that it could highlight my belly area. Im not going to lie, i was scared only because i was on my own, one of my nurses came with me though and shes lovely so made me feel more relaxed. The dye was a weird feeling, made me have a hot flush and a horrible metal taste in my mouth and as the hot flush passes down my body it goes to my legs which made me feel like i wet myself !! Was so strange! After that i went back to my room and just sat there panicking, waiting for the results. He told me that if the air was infected in my belly then i may need to have surgery. About half an hour later the doctor came back and told me its not infected so no surgery will be needed and the air will just go on its own, it will just dissolve into the tissue in my belly. I can feel a little pop every now and then, feels very weird! 

Iv been walking lots with the physio but have been on oxygen while doing it. So the doc has said he will be sending oxygen to my house for if i need it, getting breathless walking around or coughing and getting breathless. Im happy its going to be there just incase though :) 

SO thats my week again! Always full of drama! Hopefully my next blogg will be from home :D  xxxx

I would just like to say aswell one of my friends passed away today and it has been very sad for everyone who knows her, she was such a strong brave woman. She helped me alot with anything i was worried about. Its horrible aswell as she was in the room next door to me and i couldnt see her, my thoughts are with her family and friends <3 xxxx

Tuesday, 10 April 2012

22 Days & Counting...

Wow nearly been in for 4 weeks!! 

So in the last week iv had my PEG done! Yay! Finally i have it in me and have started my feeds, i started on a low dose and then everyday they have been getting higher and higher, im now on 2000 calories a day :) 

So the day of my peg came.. i was told it would be in the afternoon sometime, they didn't have an exact time but when they said afternoon i thought it would be roughly around 2 or 3. I was in the middle of having physio at 11 when all of a sudden a load of nurses and the transport man came in ready to take me down to have the op, before the op i am ment to have a shower with some sterilised shower gel, and the nurses hadn't given me that yet so i couldn't go down, as well as that my nan and grandad hadn't shown up, they were coming down with me. My mum couldn't come with me as she and my step dad got a stomach bug. So i had to rush my shower get into a gown, i have to add i was quite tearful and in quite a state! 

My nan and gramps showed up just in time to come down with me, so that relaxed me a bit.. i was sitting in a wheelchair in the ambulance thinking of how this would turn out, was i going to die? would i have a lung collapse? would it just not happen again? .. I didn't think for one second it could go smoothly, because  honestly nothing goes smoothly for me. When we got the the part of the hospital where i had to go in my nan and gramps weren't aloud in there, so i had to say my goodbyes there. They waited for me outside until it was done. I then went into a room to be asked lots of questions, allergy's, weight, all the usual - Then i was taken to another part of the ward bit, into the room id be having my op. I had to sit on the bed and wait till the surgeon came, but i just couldn't move from the wheelchair, i was stuck, i was to scared to move. 'If i move onto the bed that means its really happening. I could die.' Thats all i could think about. But then i took a deep breath got up and moved to the bed, i layed down and they had to put a heated blanket over me as it was so cold down there. As i was so nervous and just couldn't talk they suggested i have a little sedation to calm me down. 

I had the sedation and was so relaxed after, i love that stuff! .. I don't remember what we were talking about
but the nurse soon reminded me later on. Anyway, i was waiting for an hour and a half before the surgeon came, and because of the sedation i don't even remember him coming in the room!.. Next thing i know is im waking up and everything just felt so rushed, nurses running around everywhere, things beeping, i got scared! Was i okay? did i have it done? did something go wrong? My CF nurse came over told me everything was fine, i had it done! i couldn't believe it, i was so expecting something to happen.. i kept asking her, are you sure? lol While i was in recovery i got very hot! And i wasn't aloud to drink anything for another 3 hours,  
but as i was sweating they gave me a sponge on a stick to dip in water and stuck on. I was then moved to the transport van ready to go back to my bed, they told me nan, gramps and my dad were there waiting.. I should mention that i never swear in front on my family, i never have! BUT when they brought me into my room i saw them all there and said 'piece of piss' .. The GA they gave me had made me very 'high', i was buzzing! .. I don't remember allot, but the nurses have told me i was hilarious! Worries me as im not at all lol so no idea what i was going on about... Anyway the GA wore off a few hours later and i was in so much pain! I wasn't aloud any painkiller tablets as i wasn't aloud to drink. And i wasn't aloud it through drip as i already had some before i came back to my room. But i couldn't wait an hour and half till i was aloud so they gave me morphine, only 10ml but it helped so much! The pain was still there but no where near as bad as it was. 

Over the next few days i couldn't move alot, i was to scared to move in case it fell out, or i feel and hurt it, but i needed to start moving or they wont let me home! I had been on oxygen since i came out as my o2 levels were 84-85%, they should be over 90%.. 

But today i have done walks, sitting up straight, coughing without it hurting and best of all my o2 levels are 90% :) so no need for o2 all day,but im still going to use it whenever i feel a bit breathless... So Thats my week! I should be home hopefully next Monday, that will be my 4th week! So i really need to get home! 

Thank you for reading again :) really means alot to me, and thank you for all the messages of support over the last few weeks! :)