Monday, 18 June 2012

Just waiting...

Sorry i haven't blogged in a while, but iv had nothing to blogg about! 

I came home on the 19th May and have had one clinic since then..which is very good for me because normally now im starting to get ill and getting ready to go back in to hotel Pappy. 

My weight is just going up and up!! I cant stop (nor do i want to) it! Its amazing, having this PEG put in was the best thing iv done, so glad i did it too cos i got to a point where i really didnt want to go through with it..But its in and it works :D I was 6 stone on April the 23rd, and today im 7stone and 7lbs :D a stone and a half on!! wooo! The transplant team wanted my weight to be 7 stone before they do anything else... I rang them 4 weeks ago to tell them i was at my target weight now and they said they would phone me that day and tell me whats going to happen next.... i still haven't heard a thing from them!! I rang them twice more and they said the same thing 'we will ring you back' and nothing. So i rang again today and got the same thing said, im not happy now, iv waited 4 weeks to find out what to do now and in them 4 weeks i could of had tests done and be out on the list by now! Its time being wasted. Iv done what they wanted me to do now its there turn. Im starting to think il never get on the list now.

Iv been using my Oxygen when walking for long amounts of time now, Me and Ben went Cambridge shopping and i used it then, brought myself a new bag for the Oxygen cylinder to go in :) I was nervous using it, i had visions of people staring and pointing at me lol but it was okay, i had a few looks, and had two women just stating at me as they walked past, then even turn around to have another look! that got Ben a bit angry, but i was okay with it which surprised me, i thought i would be breaking down in tears lol but i was doing good with it, keeping up with Ben walking normally not stopping or sitting to catch my breath and i even tackled the TOPMAN stairs!!! i hate these stairs and always avoid using them, but i done it! Got all the way to the top :) And we walked back to the car, normally i have a massive coughing fit where im sick from doing so much walking but nothing... not even a tiny cough :) it does help massively. I just got to use it around town next, haven't used it in front of people i know from around town yet, or sainsburys... thats my next step! 

Oooh we've ordered our new Car! Were getting an Audi A1 sport :) its sooo nice, we went for a test drive the other week and to pay our deposit, £849 for a £17,000 car isnt to bad! lol The car is all ready for us and we can pick it up on the 25th July :) were just thinking of a name for it now...Obviously has to be named after someone from Harry Potter! So far we have Albus the Audi... lol 

Nothing else has happened really, just going to keep bugging the Transplant team with alot of phone calls until i know whats happening next :) 4 weeks out of hospital now and still feeling good, next clinic is on the 2nd July, hopefully by then i will know whats going on :) 

Thank you for reading again :) xxx

1 comment:

  1. I always found when wearing my oxygen I felt the need to look perfect with my make up and funky clothes so that they would leave thinking 'that girl with the oxygen had a really cute dress on' etc. So I decided people were looking at me because I looked awesome and not because of the oxygen x